Well Sorry this has taken forever and a day to get done, I know many have been waiting to know whats going on with our little nugget. LOL
Well a few weeks ago after we found out Grayson had Norovirus they let us out of the hospital pretty quick after finding out. We tried advancing his feeds pretty fast to get him to full feeds, but his tummy didn't like that :( so we were released on May 27th but he started pooping like crazy again and Wednesday at Clinic they decided he needed to be started on TPN again so he is getting nutrition and his tummy can rest some more. His white count was still pretty high also 25000. Yea not good :( and his Co2 ( it is a chemistry in your blood) Normal level is 20-24 and Graysons was 11. So they decided to admit him :( to get things straightened out. He did not like not eating again but it sure did make his belly happier, after just a day we were able to up his pedia and he was able to go home Friday the day before his birthday!!!! yea... he handled everything really well over the week end and on Tuesday at clinic they were happy to see his white count was a nice 10000 and co2 was 24!! So we decided to try half strength formula and pedia and his tummy is doing ok so far. Poop has picked up some but not terrible! We are also starting his steroid tapper again. If everything goes good he can be off in 2 weeks and have a rest week or two and start tapering the cycolsporine. YEAAAA! Cross your fingers for us!!!!
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