Well june started out a good minth celebrating my adorable little man turning one! But unfortunately we had a few trips to the hospital.
In total from may and june we had 5 hospital stays.
O2 levels
Norovirus
Norovirus
Bacterial infection
And lastly gvh flair which we just got out for Wednesday the 26 th of june. Friday june 28 his clinic went good numbers looked good. Then july 3rd numbers looked good! Except his prograft level keeps coming down even with increasing the dose so my gut is telling me we might be ending up back in the hospital :( I don't think we have gotten the gvh under control. So hopefully they just can start him on tpn again and give his tummy a little break. :( to heal.
In the good new department he is without feeding tube!!! And taking all his bottle by mouth!!! So exciting!
Over all our little man is an amazing fighter and such an inspiration to us. On top of all this he is also going througj normal baby things like getting his top teeth :( and is lots of pain because of it.
Gosh I love tha kid !
The girls are loving summer and I see them about as much as I do when Grayson os admitted because the love grandmas and cousins houses. So we have been misssing them like crazy.
We go to clinic again tomorrow so we will see where we are at gvh wise.
Love u all!!
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